 |
| As if patient identification and engagement weren't challenging enough, add in a rare disease study, and it can feel like a daunting process. Patient populations are small and widely dispersed around the globe, and finding the proper sites to support these patients is difficult. As an emerging biopharma company, limited resources can make these challenges that much harder. |
|
In this webinar, Dr. Cynthia Jackson, Jessica Perry, and Nobu Kawasaki, experts in the study of rare diseases and patient recruitment at QuintilesIMS, will share their thoughts on how emerging biopharma companies can better impact enrollment and shorten the timelines of rare disease studies. Key themes of the discussion include: |
|
|
• |
|
Rare disease studies: Impact on patient recruitment strategies |
|
|
• |
|
Next-generation, data-driven approaches to support site ID and patient recruitment |
|
|
• |
|
Improving the patient experience during the course of a clinical trial |
|
|
| Key take-aways: |
|
• |
|
Understand the differences between the broad variety of rare and ultra-rare diseases and how this will impact your patient recruitment strategies |
|
|
• |
|
Explore the variety of data sources that will inform patient recruitment strategy for rare and ultra-rare diseases |
|
|
• |
|
Outline the various methods of engagement of the rare disease patients including utilizing social media/social listening |
|
|
|
|
|
|
|
| Presenters: |
|
Dr. Cynthia Jackson, D.O., FAAP
Vice President and Head,
Pediatric and Rare Disease Centers of Excellence, QuintilesIMS |
|
Jessica Perry
Associate Director, Patient Recruitment Programs, QuintilesIMS |
|
Nobu Kawasaki
Senior Manager, Analytical Center of Excellence, R&D Solutions, QuintilesIMS |
|
| Moderator: |
|
Michelle Maskaly
Senior Editor, Pharmaceutical Executive |
|
|
|
|
|
For technical questions about this webinar,
please contact Kristen Moore at kristen.moore@ubm.com |
|
|
|
| |
|
Contact us at
www.quintilesims.com
|
|
|
